Spread the Word.

There are two sides to the “being a parent to a child with Down Syndrome” coin.
There’s the side wherein you don’t want people to view your child as “the kid with Down Syndrome,” “the Down Syndrome kid,” or, worst of all, “the Down’s baby.”
And then there’s the side where you want to shout it from the rooftops, to normalize Down Syndrome, to make people ‘see the ability’ and know that Down Syndrome is common, it’s out there, it’s not scary, and that our kids are capable of anything.
I toe this line, and which side I’m on depends on the day.
Today, I’m shouting it from the rooftops.
Today, I’m letting everyone know. Because of one word. The R-word.
Yup, the R-word AGAIN.

Now, I’ll be 100% honest. When I was a teenager, my aunt worked with people with disabilities. She would tell me time and time again not to use the R-word. And I didn’t listen. Yeah, I tried. But it wasn’t important to me. She just told me it was offensive to people with disabilities, and I didn’t really get why.

Well, that damn word came up again today, and it won’t go away, and I feel the need to explain again why it’s offensive.

So, here’s what happened. I was in a professional setting, where I was a client, and I was talking to the person working there. She was asking me about Thatcher. I said he was growing up way too fast, and her response was, “I know! It’s retarded how fast time flies!” I stopped her right there. I told her that yes, time flies, and that is many things, but it is certainly not retarded. I told her that the R-word is a word that we no longer use in our household, because of my son, who has a disability. Her answer? “Oh right, he’s Down Syndrome.”

Actually, he is NOT Down Syndrome. But yes, he has Down Syndrome. Two totally different things. Down Syndrome does not define him. It’s not who he is. It’s a part of him, yes. But he’s Thatcher, thank you very much.

Fast forward my story, I posted about this professional to a group on social media, and while most people were also appalled at what had happened, one person told me I was being a hypocrite for being offended and for educating this professional. About a month ago, I had referred to Michelle Duggar as an idiot. Yup, a celebrity who willingly puts her life in the spotlight is apparently not allowed to receive criticism on a public forum. A celebrity whose claim to fame is spitting out J-named offspring, and petitioning against the rights of transgendered people. Let’s see. I’m standing up for people with disabilities, but that’s hypocritical because I hate homophobic celebrities? I can 100% see the logic here, can’t you?

Anyway, this got me all riled up, and let to yet another Facebook broo-ha-ha. A lot of friends of mine stood up for me. There are probably some people out there that were pretty angry with me. A lot of stupid things were said from all sides of the argument. And the point? Totally lost.

So what was the point? Why was I so upset by this situation? Because even when the R-word isn’t used to describe Thatcher, it’s demeaning him. Let me explain:
The word “retarded,” at the very root of things, means “slow” and “delayed.” It’s a medical term, albeit an antiquated one. It was used to describe people who were developmentally delayed. So if you were to call Thatcher retarded, and you were a doctor, you would be from the middle ages, perhaps, but you wouldn’t be wrong.
Here’s where it goes wrong. Nowadays, we use the word “retarded” to describe things that are stupid, or ridiculous. So for example, the professional I saw today used it to describe how ridiculously fast time is moving.
So, what’s the problem with that? Simple. You’re taking a word that describes my son, and you’re making it a bad thing. You’re making it something stupid, something ridiculous, something crazy. You’re making the word mean something else, something bad. So now that word that describes my son, that word is a bad thing. By association, my son’s delays are now a bad thing.

Do you get it yet? If not, I’ll use another example. Take the word “gay.” It’s used to describe someone who is homosexual. There’s nothing wrong with that, right? But you take that word, and you use it to describe things that are lame. Maybe you are homophobic. Maybe you’re not. The misuse of the word “gay” certainly started out with homophobes and spread from there. So you take the word “gay” and you use it to describe things you think are lame, and things you don’t like. You don’t like that movie? “That movie was SO gay!” …. see what you just did? You just took the word “gay” and made it something bad. By association, if a person is gay, they are now bad, too. You don’t have to call a person “gay” to make it offensive, you just have to use the word in an offensive context to basically insult every homosexual person on earth.

The R-word is the same. You’re taking a word that describes my son, and you’re making it bad, making it wrong. It might have started out as a slur by people hating on people with special needs, but even if you know or love someone with special needs, your hateful use of the R-word is them. That’s why we need to Spread the Word to End the Word. We need to stop using this word, period. You’re never using it “in a non-offensive way.” It’s always being hurtful, whether it’s intentional or not. Maybe you think I’m a hypocrite. Maybe you don’t. I don’t care. I just care that you think about your words before you speak, and you think about what those words mean and who they might hurt, intentional or not. I’m doing my best to, as well.

And if I correct you, or point out your use of the R-word? I’m not trying to offend you. I don’t judge you. I know it just slips out, because it used to slip out of my mouth, too. I’m just telling you because the more we can spread the word and educate people on why the word hurts, the faster we can eradicate it. The faster we can eradicate antiquated ideas on what kids like mine are, what they can do, and what defines them. The faster we can make people realize what people like Thatcher can do, rather than focusing on what they can’t.

That’s what side of the coin I will always be on. Thatcher’s side.



Okay so.

My last blog was started September 19, 2013, and last updated September 29. Then I forgot about it for over three months. Whoops.

I’m going to continue that one because it’s something that I would like to reread in the future, and I still want to post it, but I wanted to apologize to everyone who said they were going to follow my blog, only to have me stop blogging after one post!

I will finish my original post tonight, with a break between when I started and now.

We got a new computer for Christmas, so I’m hoping that makes it easier to spend some time on here, and Thatcher actually has a good bedtime routine happening, so I should start having some time to blog in the future.

I can’t promise what I will blog about. There are a lot of blogs out there about Down Syndrome, and I guess that’s kind of what mine will be about. Except that really, that’s not all that my little family is about. I have found that in my four months of being a mama, the thing that annoys me the most is when people send me articles, posts, blogs about kids with DS. Now, close friends of mine might send me things sometimes, and that is okay. They screen them and figure out what I might like. And I have a few blogs I like to follow, about families with kids with DS. That is also okay. But what really grinds my gears? When people I went to high school or college with send me links about kids with DS, and they haven’t even talked to me in five years! What is that?!

I have a hard time getting into words what I think is wrong with this, but I will try.

Basically, there is a Facebook group I follow called Lose the Label (https://www.facebook.com/Losethelabel). Their campaign is basically about how people with Down Syndrome are just that – people. They happen to have Down Syndrome, but that is not their defining characteristic. They are just regular people first and foremost. I feel like, when randoms who I haven’t talked to in a zillion years message me links and photos and videos, that they have forgotten this, or that they are not aware. They don’t know that we are just a normal family. Thatcher is a normal baby. Does he have Down Syndrome? Yes. Is he different than any other baby? No. We do normal mama/baby things all day. We get up, we snuggle, get dressed, do tummy time, eat. He has his bath every night and I sing a ridiculous song I made up that makes him laugh, and he goes to bed. Everything in between is normal too. Yes, we have an OT come to our house every few weeks. And we have seen a few specialists. But honestly? That’s once in a while stuff. In our every day life, we are boring, run of the mill people. Just a mama and her beautiful baby bird, who amazes me every day with the things that he has accomplished and the strength and personality that he has. No matter what his chromosomes say, that is what we would be. We are not different, and I don’t expect to be treated that way. I don’t appreciate being labelled “That girl whose baby has Down syndrome.” I am the girl with the beautiful baby with slate/blue eyes, and wonderful, gummy smile, and the chubbiest cheeks in the world. That’s all.

So, now that I’ve been lost on a tangent, yes, I might post some things about DS. I might post some things about my crazy dogs being lunatics. I’ll post places we go, things we see. But mostly, I’ll just post about my beautiful, bouncing baby bird.